Network for Long COVID Justice

In our first year, Long COVID Justice worked with a Strategy Circle of six organizations, led by patients and those impacted by the pandemic. 

Body Politic: Through a global network of COVID-19 patients, chronic illness allies, and health and disability advocates, Body Politic breaks down barriers to patient-driven whole-person care and well-being, particularly for historically marginalized communities by facilitating peer-support, cultivating patient-led research and public education, and leading community-based advocacy. To learn more about the Body Politic Covid-19 Patient Support group, click here

The Covid-19 Longhauler Advocacy Project (C19LAP): The Covid-19 Longhauler Advocacy Project’s mission is to advance the understanding of Long COVID and expedite solutions and assistance for Longhaulers through advocacy, education research & support. C19LAP hosts and moderates a private Facebook support group for Covid-19 long-haulers and caregivers, and is a major leader in Long COVID advocacy.

Marked by Covid: Marked By Covid is a national, grassroots, non-partisan nonprofit that promotes accountability, recognition, justice, and a pandemic-free future. Marked by COVID is led by people directly harmed by the pandemic. They promote accountability, equity, and justice; amplify the voices of those most impacted; and support survivors and bereaved.

#MEAction: #MEAction fights for recognition, education and research so that, one day, all people with ME/CFS will have support and access to compassionate and effective care. Check out #MEAction’s support groups here.

Patient-Led Research Collaborative (PLRC): The Patient-Led Research Collaborative facilitates patient-led and patient-involved research into Long Covid and associated conditions while following rigorous research methodology, and advocating for policies that enable patients, particularly the most marginalized, to access care and live with dignity. PLRC grounds their work in the principles of disability justice and participatory research methods, and in the knowledge that those who experience an illness are best able to identify research questions and solutions.

Strategies for High Impact: Strategies for High Impact (S4HI) builds the power of chronically-ill and disabled people – including people living with HIV, Long COVID, ME/CFS and other complex chronic conditions – and the capacities of our groups and networks. S4HI provides comprehensive organizational, coalition and network support, from coaching and facilitation, to strategic planning, interim staffing, and resource mobilization. S4HI also shifts narratives through strategic communications and content creation, and plans and executes powerful campaigns for change. S4HI manages the Network for Long COVID Justice and has worked with the AIDS Vaccine Advocacy Coalition, HIV Racial Justice Now, Positive Women’s Network – USA, Sero Project, The Reunion Project, and The U.S. Caucus of People Living with HIV, among other partners.