Support groups hosted by Long COVID Justice and others are listed below. For tips on finding COVID advocacy groups in your area or online, check out our Get connected page!
Groups hosted by Long COVID Justice
HIV Complexities support group
Our HIV Complexities Project (HCP) offers a Zoom-based, free, monthly support group for people living with HIV of all ages who are also navigating:
- ongoing symptoms such as chronic fatigue, pain, or cognitive/memory challenges
- complex chronic conditions (e.g., Long COVID, ME/CFS, POTS), with or without a formal diagnosis
- disability (permanent, temporary, episodic, or dynamic)
More support groups
BIPOC Who Are Still Coviding
“The purpose of this group is to serve as a safe place for Black, Brown & Indigenous people of color who are actively taking precautions to avoid Covid-19.”
Platform: Facebook
Size: small (500+ members)
Technology difficulty: easy
BIPOC Women Long Covid ‘Long Hauler’ Support Group
“Support group is for women of color living anywhere in the world who have suffered from Covid 19 long term. It is a safe space support group where you can discuss your Covid 19 concerns unique to you.”
Platform: Facebook
Size: small (600+ members)
Technology difficulty: easy
Black Covid-19 Survivors Alliance
“Black and African American people have been hard hit by the COVID-19 pandemic during a time when we already face medical inequality and bias in diagnosis and treatment. Come share your story, your family’s story and let’s talk out what’s needed for recovery and reducing the spread.”
Platform: Facebook
Size: medium (1,700+ people)
Technology difficulty: easy
#MEAction
A variety of private Facebook support groups for Long COVID and ME/CFS.
Subgroups: Support groups for people living with Long COVID and ME/CFS, state chapters for location-specific support & activism, pregnancy and parenting with ME/CFS, caregiver support group, military & veteran families.
Size: small to medium
Technology difficulty: easy
Long COVID Families
“Peer support & workshops for caregivers, children, & individuals with long-term complications from COVID-19. Spanish language support (particularly for teens and school accommodation support) in progress. Also offers guidance on accommodations at school & work.”
Subgroups: Spanish groups to come in the future (check the website)
Technology difficulty: easy
Size: small (100+ people)
Dysautonomia International
“A variety of private Facebook support groups for people with autonomic nervous system disorders. Dysautonomia, including POTS, can be common in people with Long COVID or ME/CFS.”
Subgroups: Facebook groups for all US states, as well as specific support groups for teens, college, LGBTQ+, Black community, and men
Size: medium
Technological difficulty: easy
Long COVID Support
“A large private Facebook group offering support for Long COVID with international reach. For people with Long Covid or people who are caring for someone with Long Covid.”
Subgroups: none
Technological difficulty: easy
Size: large (50k+)
Bateman Horne Center
“Online support groups are led by members of BHC staff who have personal and professional experience with complex chronic illnesses. These are open to individuals impacted by ME/CFS, FM, Long COVID, MCAS, and dysautonomia including patients, family members, friends, and care partners.” Groups meet the second and third Tuesdays each month.
Subgroups: none
Technological difficulty: easy
Size: small
THE MIGHTY
A comprehensive non-social media platform for facilitating peer support across many different topics. They offer a large COVID-19 specific group (~20k members) and a small Long COVID group, in addition to many other communities available on the platform.
Subgroups: Hundreds of different subgroups based on shared identities, interests, hobbies; specific medical conditions, mental health conditions, general chronic illness & disability groups
Technological difficulty: medium to difficult
Size: Varies significantly by subgroup (<100 to 50k)
NURA Community
“A social network and online community platform for people with under-served, underfunded conditions like Long COVID, ME/CFS and fibromyalgia. Created and run by people who understand firsthand the challenges of infection-associated chronic conditions, NURA offers a comprehensive range of resources, events, and support spaces.”
Technological difficulty: medium to difficult
Facebook groups for conditions associated with Long COVID
“A super long list of wonderful Facebook groups for ME, CFS, Lyme, MCAD, POTS, Environmental Illness, and related conditions” via How To Get On (formerly known as The Sleepy Girl Guide to Disability)