If you find these resources helpful, please join our Action Network email list for more info, resources, and action alerts! 

This page is a developing resource and more updates are on the way.

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Webinars

View webinars here.

Support Groups

View our list of local, national, and international groups for people living with Long COVID and associated diseases, caregivers, family members, friends, and more.

Resources for Journalists

View our Resource List for Journalists Covering Long COVID, Disability, and Complex Chronic Illnesses.

Guides & Toolkits

Practicing Inclusion in the time of COVID

A brief guide for gatherings and call for disability solidarity, created by our parent organization Strategies for High Impact in partnership with What Would an HIV Doula Do? Available in English and Spanish, or share via social media: Instagram, Twitter. Have a story to share about using this guide with your group? Write us at [email protected]!

Organizing Toolkit to Keep Masks in Healthcare

This toolkit provides ideas for taking action and calling for mask requirements to continue in hospitals and other healthcare settings. Created by COVID Advocacy Initiative/Mandate Masks US and COVID Safe Campus with the support of Long COVID Justice and many other groups.

Medical, self-care, and pacing resources

For people with a current COVID infection

• What to do if you have COVID
  Guide from the People’s CDC

For people living with LCAD + their supporters

• Pacing Guide
  Self-management strategies useful in chronic illnesses that include PEM (post-exertional malaise) – ME Action
• Long Covid With ME
  Resources on living with Long COVID and associated diseases like myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and postural tachycardia syndrome (POTS)
• Resources for Patients
  Patient-Led Research Collaborative
• Lying Down Anyhow: Disability and the Rebel Body
  Liz Crow

For clinicians + medical providers

Share these with your providers – or if you’re a provider, share with your colleagues.

• Resources for Clinicians
  Patient-Led Research Collaborative
• ME/CFS Clinicians Coalition
  Info for clinicians on treating patients with ME/CFS, understanding PEM, etc.
• Post-Viral Syndrome & ME/CFS: What Every Clinician Needs To Know
  ME Action
• Medical education resources compiled by Long COVID Justice NYC
• ER and Urgent Care considerations for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS)
• Serie de Videos del COVID Persistente
  Long COVID Physio
• Outpatient Management of COVID-19: Rapid Evidence Review
  American Family Physician
• Approving Workplace Accommodations for Patients with Long Covid — Advice for Clinicians
  New England Journal of Medicine
  
• Submaximal Exercise Provokes Increased Activation of the Anterior Default Mode Network During the Resting State as a Biomarker of Postexertional Malaise in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome
  Journal article has been used by doctors to support disability claims (Evidence that ME/CFS has measurable effects including physical effects)

For researchers

• Resources for Long COVID researchers
  Patient-Led Research Collaborative

Disability Justice & Supports

LCAD & Disability

• How to Get On
  Self-advocacy guides for applying to disability, housing, and more.
• COVID-19 Disability Resources
  American Civil Liberties Union (ACLU)
• Guidance on “Long COVID” as a Disability Under the ADA
  Dept of Health & Human Services
• How to make ADA requests for accommodations while receiving medical care during a pandemic
  Vermont Center for Independent Living
• How ACL’s Disability and Aging Networks Can Help People with Long COVID
  Dept of Health & Human Services
  
• Services and Supports for Longer-Term Impacts of COVID-19
  Dept of Health & Human Services

Other resources

• People’s CDC
• Disability Justice – resources + readings
• The Cranky Queer Guide to Chronic Illness
  
• ER and Urgent Care Considerations for ME/CFS

Additional resources coming soon.