Resources + Toolkits

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Resources for COVID, Long COVID & associated conditions, and disability

If you find these resources helpful, please join our Action Network email list for more info, resources, and action alerts! 

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    Webinars

    View our webinars here.

    Find Local Groups & Resources

    Check out maps and lists of local and regional resources, and more.

    Support Groups

    View our list of local, national, and international groups for people living with Long COVID and associated diseases, caregivers, family members, friends, and more.

    For Journalists

    Resource List for Journalists Covering Long COVID, Disability, and Complex Chronic Illnesses.

    Guides & Toolkits

    Direct Action Toolkit

    Resource page to learn about direct action theory and tips for planning accessible, COVID-safer actions, including options for taking action from home or bed.

    Resist Mask Bans!

    Resource page with info on resisting mask bans, affirming mask rights, and connecting with local organizing.

    Practicing Inclusion in the Time of COVID

    A brief guide for gatherings and call for disability solidarity, created by our parent organization Strategies for High Impact in partnership with What Would an HIV Doula Do? Available in English and Spanish, or share via Instagram.

    Organizing Toolkit to Keep Masks in Healthcare

    This toolkit provides ideas for taking action and calling for mask requirements to continue in hospitals and other healthcare settings. Created by COVID Advocacy Initiative/Mandate Masks US and COVID Safe Campus with the support of Long COVID Justice and many other groups.

    Medical, self-care, and pacing resources

    For people with a current COVID infection

    For people living with LCAC + their supporters

    Prevention

    Prevention basics 

    Masks work!

    Tests

    Vaccines

    Vaccine access is a shifting landscape under the current U.S. administration, and we will try to add updates here when possible.

    • Use vaccines.gov to find providers that offer free COVID-19 vaccines through the Bridge Access Program. 
    • If you do not want to get an mRNA vaccine (Moderna or Pfizer) or had bad side effects, consider the Novavax vaccine. It is less widely available, though it is available at Costco (membership not required), Rite Aid, Publix and CVS and other places. Use the Novavax’s vaccine finder to find a vaccine near you (call pharmacy to confirm results.)

    Other COVID prevention tools

    COVID-safer events and gatherings

    Zines

      Check them out online, or print and distribute in your community:

      LCAD + HIV

      Long COVID may be 4 times more likely in people living with HIV. Check out our HIV & Long COVID webpage for resources and info.

      Long COVID is a Trans Issue

      Webinar recording, slides, and resource list can be found here.

      For clinicians + medical providers

      Share these with your providers – or if you’re a provider, share with your colleagues.

      For researchers

      Disability Resources

      LCAC & Disability

      Applying for Social Security Disability (SSDI)

      Workplace accommodations + other supports

      Other resources

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