Resources for COVID, Long COVID & associated conditions, and disability
If you find these resources helpful, please join our Action Network email list for more info, resources, and action alerts!
Webinars & community conversations
View our webinar recordings and resources.
Local and online advocacy, affinity, & support groups
Find local community and/or connect online:
- Get connected: Find local and online advocacy groups, community spaces, and resources.
- Support groups: Find local, national, and international groups for people living with Long COVID and associated diseases, caregivers, family members, friends, and more.
For Journalists
Resource List for Journalists Covering Long COVID, Disability, and Complex Chronic Illnesses.
Guides & Toolkits
Direct Action Resource List
Learn about direct action theory and get tips for planning accessible, COVID-safer actions, including options for taking action from home or bed.
Resist Mask Bans!
Get info on resisting mask bans, affirming mask rights, and connecting with local organizing.
Practicing Inclusion in the Time of COVID
A brief guide for gatherings and call for disability solidarity, created by our parent organization Strategies for High Impact in partnership with What Would an HIV Doula Do? Available in English and Spanish, or share via Instagram.
Organizing Toolkit to Keep Masks in Healthcare
This toolkit provides ideas for taking action and calling for mask requirements to continue in hospitals and other healthcare settings. Created by COVID Advocacy Initiative/Mandate Masks US and COVID Safe Campus with the support of Long COVID Justice and many other groups.
Medical, self-care, and pacing resources
For people with a current COVID infection
- Guides on navigating a current COVID infection:
- What to do if you or someone else in your household has COVID-19 – Short guide from our Long COVID Essentials series, with links to more detailed info
- What to do if you get COVID – Tips from a medical researcher and biology professor
- The Problem with Pulse Oximeters: A Long History of Racial Bias
Common advice for people with current COVID infection is to use a pulse oximeter to monitor the oxygen levels in your blood, but as this article explains: “for darker-skinned patients, oxygen saturation readings can read as normal when they are, in fact, dangerously low.”
For people living with LCAC + their supporters
- Long COVID Essentials: A series of 30+ resource sheets for people living with LCAC, caregivers, and medical providers. Created by Long COVID Justice in partnership with The Sick Times.
- We can’t talk about Long COVID without talking about ME/CFS – our resource page
- Pacing Guide: Self-management strategies useful in chronic illnesses that include PEM (post-exertional malaise) – #MEAction
- Lying Down Anyhow: Disability and the Rebel Body – Liz Crow
- Cooling tips: Strategies for hot weather
- Temperature dysregulation: Info & crowdsourced strategies – #MEAction
- Cooling tips 101: Text & audio resources – Long COVID Advocacy
Finding Long COVID care
- Tips: finding and talking to providers, tracking symptoms, meds & more – from our Long COVID Essentials series
- Still Masked, Still Right: A Data-Driven Case for Vigilance
Made by a doctor, for doctors, so that patients can print and bring to medical appointments. One-page summary of recent peer reviewed science on the effects of SARS-CoV-2 on the brain, immune system, cardiovascular system, and overall functioning—even after mild or asymptomatic infection. - Find medical providers experienced with LCAC, ME, dysautonomia, plus directories of Long COVID clinics
- Find COVID-conscious therapists
- Related resource: “But my therapist said…” COVID-Informed Therapists Chat via the Public Health is Dead podcast
Prevention
Prevention basics
- The goal is to use multiple strategies or “layers of protection” to prevent (re)infection.
- Learn more in our How to avoid getting COVID right now resource.
- Wastewater & other data sources: COVID-19 spreads year round. Here’s how to track it. – Webinar from The Sick Times, May 2006
NEW: Meds to take after an exposure (“post-exposure prophylaxis”)
- Xocova (ensitrelvir)– Helps prevent infection after a COVID-19 exposure, and can also or lessen virus levels if you do get infected. Recently approved in Japan and the U.S.
- Learn more via The Sick Times: FDA approves COVID-19 antiviral Xocova as PEP. But will it be accessible?
Masks work!
- Masking info, buying guides, and discussion:
- All About Masks: An overview – World Health Network
- People’s CDC guide to masks
- What Is Mask Filtration Efficiency?
- DIY Fit testing your mask: video + document
- Masking through blackness zine – Sabrina Sims
- How to mask with a beard
- Understanding types of masks – Mask Together America
- Mask Testing & Review videos – The Mask Nerd/Aaron Collins
- Clear masks
- Buying guides & community conversations:
- Masks4All– Reddit board for discussion, with wiki for international mask buying links, fit test info, and more.
- BuyMasks– info, buying options, discount codes and more
- Project N95 – Now closed but has lots of mask-buying resources and info about different types of masks
- Donations and discounts:
- Bona Fide Masks – Nonprofits seeking donations can contact [email protected], learn more about their past donations on their socials. They also sell in large bulk packs for discounts.
- Find your local Mask Bloc (or create one!)
- Articles + studies on mask effectiveness
- Masks Work. Distorting Science to Dispute the Evidence Doesn’t – Scientific American
- Don’t believe those who claim science proves masks don’t work – Dr. Lucky Tran in The Guardian
- Why One-Way Masking Isn’t a Very Good Public Health Solution by reporter Abdullah Shihipar, MPH
- Masks During Pandemics Caused by Respiratory Pathogens—Evidence and Implications for Action – Journal of the American Medical Association (JAMA)
Tests
- Understanding types of tests – Peoples CDC
- Guide to Rapid Test Reliability – Clean Air Club
- Find low cost + free tests near you
- CVS and Walgreens offer a variety of tests, including PCR tests which are increasingly hard to find! Look for a CVS “Minute Clinic” and call to confirm. Prices and availability may vary based on location, test type, insurance, etc.
- Fastlabtech.com will deliver PCR tests by mail (free with insurance, $325 without)
- Other brands include: Lucira, Metrix, or PlusLife (learn more and get support via Virus.Sucks, the Pluslife subreddit and Facebook group)
Vaccines & other preventative treatments
Vaccine access is a shifting landscape under the current U.S. administration, and we will try to add updates here when possible.
- Vaccine basics:
- Finding vaccines (U.S.)
- Use vaccines.gov to find providers that offer free COVID-19 vaccines through the Bridge Access Program.
- CDC vaccine info page
- Comparing the COVID-19 Vaccines: How Are They Different? – Yale Medicine (May 2025)
- FDA COVID-19 Vaccine Approval: Live Updates on Pfizer, Moderna, Novavax, and More – GoodRx
- Note on Novavax/Nuvaxovid: Unlike Pfizer and Moderna, Novavax is not available year-round, but is typically available in spring and fall. The most recent doses expired in May 2026 and the next doses should be available in fall 2026.
- Learn more in this article: FDA approves Novavax COVID-19 vaccine, but with unusual restrictions on its use.
- If you do not want to get an mRNA vaccine (Moderna or Pfizer) or had bad side effects, consider Novavax. It is less widely available, though it is typically available at Costco (membership not required), Rite Aid, Publix and CVS and other places. Use Novavax’s vaccine finder to find a vaccine near you (call pharmacy to confirm results.).
- Vaccine alternatives for immunocompromised people
Other COVID prevention tools
- Nasal sprays and mouthwashes: Some have ingredients that may protect against COVID, reducing rates of getting it or making it less harmful if you do get it. There is very little data on these agents but some are choosing to use them in addition to masks and other protective measures. We are looking for more info/data and will update when possible.
- Clean Air Club IG post with sources
- Invisible defenses: A guide for cleaner indoor air – The Sick Times
- Air purifiers: There are several tools for choosing one for your space, though some are complex! Let us know if you have a favorite resource.
- Portable Air Cleaner (HEPA filter) buying guide – Clean Air Stars
- List of rebates for U.S. states- Most power companies in the U.S. provide $25-$75 rebates on air purifiers when you purchase through their marketplace or submit info to their rebate application.
- Find or create an air purifier lending library
- Scientists’ air purifier spreadsheet – Clean Air Crew
- Mini handheld air purifier (DIY and commercial versions)
- DIY air filters aka Corsi-Rosenthal boxes:
- How To guide & info – Clean Air Crew
- Illustrated guide on making DIY air purifiers
- CR boxes Reddit group– Message board for sharing tips and info
- Demystifying wastewater surveillance data, for Covid-19 – The Sick Times + WastewaterSCAN
- COVID Safety Tips for Dentist Appts – Clean Air Crew
- Portable Air Cleaner (HEPA filter) buying guide – Clean Air Stars
COVID-safer events and gatherings
- Guides for COVID-safer events are available via:
- Examples of COVID-safer event policies + protocols:
- COVID-19 Access Practices from Nash Mask4MaskQueers
- COVID Safety at the Queer Women of Color Film Festival – QWOCMAP
- Covid protocol from SONG (Southerners on New Ground)’s Queer South Homecoming retreat
- COVID-19 Policy and Protocols for In-Person Gathering (2024) – Castanea Fellowship
- Covid-19 and Climate Safety Practices for Western Massachusetts – Valley Disability Action
- 2023 Brooklyn Art Book Fair
- Crowdfunding IG post where we asked for workplace examples, more are needed!
Zines
Check them out online, or print and distribute in your community:
- COVID Cautious Queers Digital Zine – Steel Transplants
- COVID-Safer Pride Guide – ACT UP NY
- What’s Up with COVID and How to Protect Yourself, 2024 edition – Hazel Newlevant
- Mask bans and the new ugly laws – Sickos podcast
- Mask Up! We Need You – Palestinian Solidarity, COVID-19 and the Struggle for Liberation – Sheyam Ghieth & Rimona Eskayo
- Masking through blackness – Sabrina Sims
- Special edition zine: One year of The Sick Times
- COVID is a DRAG: Stay safer in the scene – AirgasmicLA
- COVID Zine Library – Large library of zines, collected by Sweetfern
LCAD + HIV
Long COVID may be 4 times more likely in people living with HIV. Check out our HIV & Long COVID webpage for resources and info.
Long COVID is a Trans Issue
Webinar recording, slides, and resource list can be found here.
For doctors, healthcare providers, and researchers
For resources that are geared especially toward healthcare providers and researchers, visit our new Providers & Researchers page. Plus, all resources in our Long COVID Essentials series are great to share with your providers.
Disability Resources
LCAC & Disability
Applying for Social Security Disability (SSDI) & other benefits
- How to Get On – Self-advocacy guides for applying to disability, housing, home aids, transportation, and much more.
- Long COVID and SSDI (Social Security Disability Insurance)
- Text/articles/guides:
- A Lawyer’s Guide to Long COVID and Long Term Disability Insurance Claims – Short introduction (2021)
Andrew Kantor / Body Politic - Long COVID and Social Security Disability – Article/text (2022)
Massachusetts ME/CFS & FM Association - A Patient’s Guide to the Social Security Administration (SSA) Disability Application Process – Detailed guide (2024)
Long COVID Clinic (University of Washington) - My Long COVID Disability Journey
A patient’s story of getting her employer-based disability case overturned on appeal
- A Lawyer’s Guide to Long COVID and Long Term Disability Insurance Claims – Short introduction (2021)
- Webinars/videos:
- How to Apply for Social Security Disability – Webinar & article (2026)
Long COVID MD - From Brain Fog to Benefits: Navigating ERISA and Winning Long COVID Disability Appeals – Webinar (2025)
Pandemic Patients - Long COVID and SSDI – Webinar (2024)
Pandemic Patients
- How to Apply for Social Security Disability – Webinar & article (2026)
- Get legal help:
- Apply for legal help with your disability application, workers’ comp, etc
Pandemic Patients / Pandemic Legal
- Apply for legal help with your disability application, workers’ comp, etc
- Text/articles/guides:
Navigating healthcare during the pandemic
- How to make ADA requests for accommodations while receiving medical care during a pandemic
Vermont Center for Independent Living - Navigating healthcare – info for people with disabilities
American Association on Health & Disability - Medicaid – advocacy steps & general resources
Disability Rights Education & Defense Fund
Workplace accommodations + other supports
- Guidance on “Long COVID” as a Disability Under the ADA, Section 504, and Section 1557
Dept of Health & Human Services - Ask JAN
Guidance on workplace accommodations from the Job Accommodation Network - Long Covid at Work: A Manager’s Guide
Harvard Business Review - How ACL’s Disability and Aging Networks Can Help People with Long COVID
Dept of Health & Human Services
For resources to share with your healthcare providers, which can support Long COVID diagnosis and treatment, see our Providers & Researchers page.
Disability Justice – learn more!
Resources, readings, videos
- 10 Principles of Disability Justice | Sins Invalid
- Disability Justice – a working draft | Patty Berne
- Black Disability Justice Syllabus | Sins Invalid
- Exploring Disability Justice | Conspire for Change
- Disability Justice – resources + readings | Project LETS
- Disability Visibility Project
- #StaceyTaughtUs Syllabus: Work by Stacey Park Milbern
- Principles of Health Justice | Health Justice Commons
- The Cranky Queer Guide to Chronic Illness
Videos & podcasts
- Disability Justice workshops | Barnard Center for Research on Women
- The Anti-Black Pinnings of Ableism | Groundings podcast feat. Dustin Gibson
Trainings for groups & individuals
- DJ trainings for groups and individuals | Peoples Hub
- Understanding and Transforming the Medical Industrial Complex | Health Justice Commons