Click here for a printable PDF with scannable QR codes, created by Body Politic.
Black Covid-19 Survivors
A private Facebook group for Black COVID-19 survivors. From the group: “Black and African American people have been hard hit by the COVID-19 pandemic during a time when we already face medical inequality and bias in diagnosis and treatment. Come share your story, your family’s story and let’s talk out what’s needed for recovery and reducing the spread.”
Technological difficulty: easy
Size: medium (1,700+ people)
#MEAction
Offering a variety of private Facebook support groups for Long COVID and ME/CFS. ME/CFS stands for myalgic encephalomyelitis, also called
chronic fatigue syndrome.
Subgroups: support groups for Long COVID and ME/CFS., state chapters for location-specific support & activism, pregnancy and parenting with ME/CFS, caregiver support group, military & veteran families
Size: small to medium
Technology difficulty: easy
Long COVID Families
Peer support & workshops for caregivers, children, & individuals with long-term complications from COVID-19. Spanish language support (particularly
for teens and school accommodation support) in progress – please check website. Also offers guidance on accommodations at school & work.
Subgroups: Spanish groups to come in the future (check the website)
Technology difficulty: easy
Size: small (100+ people)
Dysautonomia International
Offering a variety of private Facebook support groups for people with autonomic nervous system disorders. Dysautonomia can be common in people with Long COVID or ME/CFS. (POTS is a common type, but not the only type of dysautonomia.)
Subgroups: Facebook groups for all US states, as well as specific support groups for teens, college, LGBTQ+, Black community, and men
Size: medium
Technological difficulty: easy
Long COVID Support – Facebook
A large (50k+) private Facebook group offering support for Long COVID with international reach. This is a private group for people with Long Covid or people who are caring for someone with Long Covid.
Subgroups: none
Technological difficulty: easy
Size: small
Bateman Horne Center
Twice monthly support zooms facilitated by professionals, second and third Tuesday of each month 12-1:00pm PT. For individuals with ME/CFS, Long COVID,
fibromyalgia, dysautonomia and related chronic illnesses. As well as family
members, friends, and care partners.
Subgroups: none
Technological difficulty: easy
Size: small
THE MIGHTY
A comprehensive non-social media platform for facilitating peer support across many different topics. They offer a large COVID-19 specific group (~20k members) and a small Long COVID group, in addition to many other communities available on the platform.
Subgroups: Hundreds of different subgroups based on shared identities, interests, hobbies; specific medical conditions, mental health conditions, general chronic illness & disability groups
Technological difficulty: medium to difficult
Size: Varies significantly by subgroup (<100 to 50k)