Click here for a printable PDF with scannable QR codes, created by Body Politic.
Groups hosted by Long COVID Justice
HIV-Long COVID support group
We’re launching a new support group for people living with both HIV and Long COVID. The group is free to join, but we ask that you to commit to attending all four sessions. We’ll meet every other Thursday on Zoom: October 24, November 7 & 21, and December 5 2024 from 6:30pm – 8:00pm.
If you can’t join on these dates, you can sign up to be informed when 2025 dates are released.
Note: Participants must live in the U.S. (regardless of immigration status).
More support groups
BIPOC Women Long Covid ‘Long Hauler’ Support Group
Support group is for women of color living anywhere in the world who have suffered from Covid 19 long term. It is a safe space support group where you can discuss your Covid 19 concerns unique to you.
Size: small (600+ members)
Technology difficulty: easy
Black Covid-19 Survivors Alliance
A private Facebook group for Black COVID-19 survivors. From the group: “Black and African American people have been hard hit by the COVID-19 pandemic during a time when we already face medical inequality and bias in diagnosis and treatment. Come share your story, your family’s story and let’s talk out what’s needed for recovery and reducing the spread.”
Size: medium (1,700+ people)
Technology difficulty: easy
#MEAction
A variety of private Facebook support groups for Long COVID and ME/CFS. ME/CFS stands for myalgic encephalomyelitis, also called
chronic fatigue syndrome.
Subgroups: support groups for Long COVID and ME/CFS., state chapters for location-specific support & activism, pregnancy and parenting with ME/CFS, caregiver support group, military & veteran families
Size: small to medium
Technology difficulty: easy
Long COVID Families
Peer support & workshops for caregivers, children, & individuals with long-term complications from COVID-19. Spanish language support (particularly for teens and school accommodation support) in progress – please check website. Also offers guidance on accommodations at school & work.
Subgroups: Spanish groups to come in the future (check the website)
Technology difficulty: easy
Size: small (100+ people)
Dysautonomia International
Offering a variety of private Facebook support groups for people with autonomic nervous system disorders. Dysautonomia can be common in people with Long COVID or ME/CFS. (POTS is a common type, but not the only type of dysautonomia.)
Subgroups: Facebook groups for all US states, as well as specific support groups for teens, college, LGBTQ+, Black community, and men
Size: medium
Technological difficulty: easy
Long COVID Support – Facebook
A large (50k+) private Facebook group offering support for Long COVID with international reach. This is a private group for people with Long Covid or people who are caring for someone with Long Covid.
Subgroups: none
Technological difficulty: easy
Size: small
Bateman Horne Center
Twice monthly support zooms facilitated by professionals, second and third Tuesday of each month 12-1:00pm PT. For individuals with ME/CFS, Long COVID, fibromyalgia, dysautonomia and related chronic illnesses. As well as family members, friends, and care partners.
Subgroups: none
Technological difficulty: easy
Size: small
THE MIGHTY
A comprehensive non-social media platform for facilitating peer support across many different topics. They offer a large COVID-19 specific group (~20k members) and a small Long COVID group, in addition to many other communities available on the platform.
Subgroups: Hundreds of different subgroups based on shared identities, interests, hobbies; specific medical conditions, mental health conditions, general chronic illness & disability groups
Technological difficulty: medium to difficult
Size: Varies significantly by subgroup (<100 to 50k)
NURA Community
A social network and online community platform for people with under-served, underfunded conditions like Long COVID, ME/CFS and fibromyalgia. Created and run by people who understand firsthand the challenges of infection-associated chronic conditions, NURA offers a comprehensive range of resources, events, and support spaces.
Technological difficulty: medium to difficult
Related resources
• More support groups for diseases associated with Long COVID: “A super long list of wonderful Facebook groups for ME, CFS, Lyme, MCAD, POTS, Environmental Illness, and related conditions” via How To Get On (formerly known as The Sleepy Girl Guide to Disability)
• Connect with COVID organizers and advocates: For tips on how to find COVID organizing in your area, connect with groups online, or info on how to start your own group– check out our new Get connected page!