Long COVID Justice is co-sponsoring a campaign organized Mask Together America, and endorsed by other leading public health groups. “March 15 is International Long COVID Awareness Day. NYC was an early pandemic epicenter, and countless New Yorkers now face Long COVID without FDA-approved treatments or diagnostic biomarkers. Signing this petition tells New York City to […]
Author: Long COVID Justice
Los Angeles to Recognize International Long Covid Awareness Day
We’re glad to share that the campaign to formally recognize Long COVID Awareness Day in Los Angeles has been successful. Thanks to all who signed the petition, and to Clean Air LA for organizing this campaign – learn more in their press release:
ICE Makes Me Sick: Fund healthcare, not violence
Long COVID Justice is partnering with #MEAction on a new campaign focused on U.S. budgets and priorities. Join people with chronic illness, disabled people, and families who depend on caregivers to demand that Congress stop bankrolling ICE violence while slashing our healthcare and home care. ICE makes us sick—morally and medically. Congress has poured staggering sums of money into ICE—now the […]
Updates to our Direct Action Toolkit!
Check out our Direct Action Resource List for tips on:• planning actions that are more accessible & COVID-safer• participating in actions while sick or disabled• ways to protest & collaborate from home or bed• incorporating disability justice principles in your organizing• and much more! Masks help protect our communities from sickness, surveillance, and doxxing. It’s […]
Public health orgs say: Recognize Long COVID Awareness Day in Los Angeles
Long COVID Justice is co-sponsoring a campaign organized by Clean Air LA and endorsed by other groups including #MEAction, Public Health Action Network, Mask Together America, and others. “The petition urges Los Angeles to officially recognize March 15 as International Long Covid Awareness Day and lighting City Hall teal in observance. We call on the […]
LCJ endorses letter urging WHO to recognize respirators as the standard in healthcare
Long COVID Justice / S4HI director Emi Kane has endorsed a letter from World Health Network that urges the World Health Organization (WHO) to recognize respirators as the default standard of protection in healthcare settings. As World Health Network explains: “The letter respectfully calls on the WHO to strengthen its infection prevention guidance by recognizing […]
Gabriel San Emeterio speaks on HIV, disability, and the NYC Trans Archives
LCJ Senior Fellow Gabriel San Emeterio is the Disability, language justice, and HIV director and board member at the NYC Trans Archive. Gabriel will be speaking about their work with the archive, with a focus on HIV and disability, during roundtables at two upcoming conferences: Making Trans History: Resisting Censorship, Preserving Culture, and Building Radical […]
Year in review, plus news on what’s next
It has been a year of difficult moments – from pandemic denialism to cutting essential programs – and we know many of our community members are struggling. Long COVID Justice will never stop fighting for our community. When public health infrastructure doesn’t support our needs, we organize to share lifesaving information. When they try to […]
HIV Complexities: A community conversation, 10/16/25
Third Wave Fund features LCJ for Disability Pride Month
Third Wave Fund features Long COVID Justice for Disability Pride Month as a grantee partner of the Disability Frontlines Fund. Third Wave Fund writes: Five years after the COVID-19 pandemic began, we continue to look towards organizations like our grantee partner Long COVID Justice that hold the frontlines in confronting the Long COVID crisis as […]
Vote no on the Big Deadly Bill (H.R. 1)
Tell your Reps: Vote against the Big Deadly Bill! The Senate passed the budget bill & sent it back to the House. Calls needed ASAP, especially if you have Republican reps! You don’t have to be an expert to make a call, and calling scripts and tools make it easy. If the budget bill passes, […]
Breathing for Justice recordings & resources now available
We’re pleased to announce that the recordings and resources from our Breathing for Justice webinar are now available. This event explored how the intersections of Long COVID and disability justice affect individuals and communities, with a focus on inclusive health research and public history. It was made possible in part by grants from Illinois Humanities […]
Tell the FDA: We Need Universal Vaccine Access
Long COVID Justice is lifting up a campaign organized by the People’s CDC to protect our access to vaccines. “Our access to COVID vaccines is under attack. It’s more important than ever to make our voices heard by making public comment to the FDA by May 23 at 11:59 PM EST. According to CIDRAP, “The […]
“Long COVID Dreams” memorial installed in New York City
“Long COVID Dreams,” our community memorial, is now installed at Green-Wood Cemetery in Brooklyn, along with memorials from 40+ other community groups, as part of the annual Naming the Lost project. “Long COVID Dreams” was created by community artists Jenna Bitar and Luca Stancato, with the support of Long COVID Justice, and contributions from people […]
Tell U.S. Officials to Stop Mask Bans
We’re co-sponsoring Mask Together America’s campaign to write to U.S. officials to ask them to prohibit mask banning and provide mitigation tools instead. “Mask bans are disability injustice, discrimination, and violation of human rights. They are an ADA issue. No one should be required to disclose their own or their household’s health conditions, or other […]
Tell CDC: We Need Novavax!
Tell CDC: we need Novavax! TODAY is the public comment deadline. The U.S. CDC’s Advisory Committee on Immunization Practices (ACIP) meets next week, where they are likely to decide if the 2025 Novavax vaccine is approved. Many people, including many chronically ill and disabled people, have fewer side effects from Novavax. Some research suggests that […]
Long COVID Justice supports Illinois “right to mask” bill
Medical masks and other forms of protective medical equipment are effective tools to prevent the spread of diseases and illnesses. But some lawmakers acrossthe country—including in Chicago—are infringing on the rights of citizens by trying to ban or criminalize them. Learn more about HB3853, The Protective Medical Equipment Freedom Act, and how to support on the […]
Nearly 100 organizations demand New York lawmakers reject a state mask ban
Today the New York Civil Liberties Union (NYCLU), Jews for Mask Rights, and New York Doctors Coalition sent letters to Governor Hochul, President Pro Tempore Stewart-Cousins, and Speaker Heastie calling on them to ensure no legislation banning masks advances in New York State this session. The letters detail how banning masks threatens New Yorkers’ health […]
Patient advocacy groups press CDC to implement inclusive COVID-19 isolation and prevention guidelines
Leaders of Pan End It!, MaskTogetherAmerica, and Long COVID Justice met recently with Centers for Disease Control and Prevention (CDC) officials to discuss urgent recommendations on COVID-19 isolation and prevention guidelines. Seeking policies to protect the health of millions of Americans, these patient-led groups expressed deep concerns about the CDC’s March 2024 Respiratory Virus Guidance […]
Stop the Spread of Mask Bans Before It’s Too Late
We’re co-sponsoring Fight for the Future’s campaign to tell lawmakers:no mask bans, no exceptions. With facial recognition technology on the rise and COVID and Long COVID still running rampant in our communities, banning masks would put us all in danger, especially the Disabled, BIPOC, and low-income communities already experiencing disproportionate harm. Mask bans grant police […]
Tell Congess: Test2Treat Program Saves Lives!
Home #Test2Treat program for COVlD and flu saves lives. Let’s fight for it! Long COVID Justice is co-sponsoring Mask Together America’s campaign to save the Test2Treat program. #Test2Treat was designed to reduce disparities for the most at-risk populations, by offering FREE tests, telehealth and treatment for both COVlD and flu, and was recently ended even though 100 million […]
Long COVID Justice BIPOC fellow presents at AAHD conference
What could adequate care and precision treatment for Long COVID look like? Join us for a conversation with a panel of patient advocates & researchers, who will discuss the importance of patient-led research efforts and how that has shaped emerging research on Long COVID. We need inclusive research that centers patient voices and draws from […]
Tell Your Reps to Support the TREAT Long COVID Act
Last month, Representatives Ayanna Pressley, Don Bayer, and Lisa Blunt Rochester re-introduced the TREAT Long COVID Act, which would offer support to those with Long COVID in the form of increased access to medical care and treatment. You can find the Bill Summary here, and the full text here. Now we need to build support by encouraging our Representatives […]