Join us to celebrate the launch of our new Long COVID oral history website! You’ll hear from project organizers and participants about their experience in creating a community-centered, people’s history of Long COVID. We’ll share the story behind the project, highlights from the interviews, and more.
Listening for the Long Haul (LFLH) is an oral history project grounded in disability justice that features 20+ interviews with people living with Long COVID and associated conditions (LCAC). LFLH is a collaboration between Long COVID Justice and History Moves, a public history project based at the University of Illinois Chicago (UIC).
LFLH Launch
Weds May 6, 4:30-6pm ET
Zoom
Featured speakers
- LFLH participants:
- Chimére L. Sweeney, Founder of The Black Long COVID Experience & The Blackest Side of Long COVID
- Jacquie Luciano, Patient advocate and Long COVID Advisor for National Organization for Nurses with Disabilities
- Tracey Thompson, Founder of BIRCH (Black Indigenous Racialized Covid Health)
- Una Osato, Patient Advocate & community artist
- LFLH organizers:
- Jennie Brier, UIC professor & LFLH project lead
- Kaimara Herron, UIC PhD student & LFLH project manager
- Gabriel San Emeterio, Long COVID Justice senior fellow
Full speaker bios coming soon.
Access notes
- Panel followed by Q&A
- Presentations will be in spoken English with ASL interpretation
- Audio description of visual materials will be included
- Access doula for support during the event
- Participation in chat or Q&A is optional
- Check the event time in your time zone
- Recording & resources will be sent to all who register.
- Access requests or other questions? Write [email protected]
LFLH: Project goals & vision
Rather than try to create a singular, mainstreamed account of Long COVID, we collected a variety of stories from a small group of people most impacted by LCAC and its social and economic ripple effects. This includes many voices from marginalized communities and intersectional identities, including a variety of identities across race, gender, disability, class, immigrant status, location, and more.
This project is an offering to our fellow longhaulers. We’re sharing our struggles and joys, moments of connection and isolation, tales of survival and solidarity. We’re building a living history of Long COVID, and pushing back against COVID denialism and ableism. Our stories are powerful, and our hope is that we can use them to shift the narrative of Long COVID – including educating healthcare providers and creating concrete changes in the care and support that we need and deserve.
This project is possible due to generous funding from the Andrew A. Mellon Foundation’s Humanities without Walls Consortium and UIC Institute for Policy and Civic Engagement.