News & updates

Check out our newsfeed below for all the latest updates on our projects, advocacy, events, and more.

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Tell the mayor: NYC must recognize International Long COVID Awareness Day

Long COVID Justice is co-sponsoring a campaign organized Mask Together America, and endorsed by other leading public health groups. “March 15 is International Long COVID Awareness Day. NYC was an early pandemic epicenter, and countless New Yorkers now …

Los Angeles to Recognize International Long Covid Awareness Day

We’re glad to share that the campaign to formally recognize Long COVID Awareness Day in Los Angeles has been successful. Thanks to all who signed the petition, and to Clean Air LA for organizing this campaign – learn …

ICE Makes Me Sick: Fund healthcare, not violence

Long COVID Justice is partnering with #MEAction on a new campaign focused on U.S. budgets and priorities. Join people with chronic illness, disabled people, and families who depend on caregivers to demand that Congress stop bankrolling ICE violence while slashing our healthcare and …

Updates to our Direct Action Toolkit!

Check out our Direct Action Resource List for tips on:• planning actions that are more accessible & COVID-safer• participating in actions while sick or disabled• ways to protest & collaborate from home or bed• incorporating disability justice principles …

Public health orgs say: Recognize Long COVID Awareness Day in Los Angeles

Long COVID Justice is co-sponsoring a campaign organized by Clean Air LA and endorsed by other groups including #MEAction, Public Health Action Network, Mask Together America, and others. “The petition urges Los Angeles to officially recognize March 15 …

LCJ endorses letter urging WHO to recognize respirators as the standard in healthcare

Long COVID Justice / S4HI director Emi Kane has endorsed a letter from World Health Network that urges the World Health Organization (WHO) to recognize respirators as the default standard of protection in healthcare settings. As World Health …

Gabriel San Emeterio speaks on HIV, disability, and the NYC Trans Archives

LCJ Senior Fellow Gabriel San Emeterio is the Disability, language justice, and HIV director and board member at the NYC Trans Archive. Gabriel will be speaking about their work with the archive, with a focus on HIV and …

Year in review, plus news on what’s next

It has been a year of difficult moments –  from pandemic denialism to cutting essential programs – and we know many of our community members are struggling. Long COVID Justice will never stop fighting for our community. When …

HIV Complexities: A community conversation, 10/16/25

Join us for a conversation that spans generations and settings, both urban and rural, about living with HIV and dealing with complex chronic conditions, which often share symptoms like chronic fatigue, pain, cognitive dysfunction, brain fog, and memory …

Third Wave Fund features LCJ for Disability Pride Month

Third Wave Fund features Long COVID Justice for Disability Pride Month as a grantee partner of the Disability Frontlines Fund. Third Wave Fund writes: Five years after the COVID-19 pandemic began, we continue to look towards organizations like …

Vote no on the Big Deadly Bill (H.R. 1)

Tell your Reps: Vote against the Big Deadly Bill! The Senate passed the budget bill & sent it back to the House. Calls needed ASAP, especially if you have Republican reps! You don’t have to be an expert …

Breathing for Justice recordings & resources now available

We’re pleased to announce that the recordings and resources from our Breathing for Justice webinar are now available. This event explored how the intersections of Long COVID and disability justice affect individuals and communities, with a focus on …

Tell the FDA: We Need Universal Vaccine Access

Long COVID Justice is lifting up a campaign organized by the People’s CDC to protect our access to vaccines. “Our access to COVID vaccines is under attack. It’s more important than ever to make our voices heard by …

“Long COVID Dreams” memorial installed in New York City

“Long COVID Dreams,” our community memorial, is now installed at Green-Wood Cemetery in Brooklyn, along with memorials from 40+ other community groups, as part of the annual Naming the Lost project. “Long COVID Dreams” was created by community …

Tell U.S. Officials to Stop Mask Bans

We’re co-sponsoring Mask Together America’s campaign to write to U.S. officials to ask them to prohibit mask banning and provide mitigation tools instead. “Mask bans are disability injustice, discrimination, and violation of human rights. They are an ADA …

Tell CDC: We Need Novavax!

Tell CDC: we need Novavax! TODAY is the public comment deadline. The U.S. CDC’s Advisory Committee on Immunization Practices (ACIP) meets next week, where they are likely to decide if the 2025 Novavax vaccine is approved. Many people, …

Long COVID Justice supports Illinois “right to mask” bill

Medical masks and other forms of protective medical equipment are effective tools to prevent the spread of diseases and illnesses. But some lawmakers acrossthe country—including in Chicago—are infringing on the rights of citizens by trying to ban or criminalize …

Nearly 100 organizations demand New York lawmakers reject a state mask ban 

Today the New York Civil Liberties Union (NYCLU), Jews for Mask Rights, and New York Doctors Coalition sent letters to Governor Hochul, President Pro Tempore Stewart-Cousins, and Speaker Heastie calling on them to ensure no legislation banning masks …

Patient advocacy groups press CDC to implement inclusive COVID-19 isolation and prevention guidelines

Leaders of Pan End It!, MaskTogetherAmerica, and Long COVID Justice met recently with Centers for Disease Control and Prevention (CDC) officials to discuss urgent recommendations on COVID-19 isolation and prevention guidelines. Seeking policies to protect the health of …

Stop the Spread of Mask Bans Before It’s Too Late

We’re co-sponsoring Fight for the Future’s campaign to tell lawmakers:no mask bans, no exceptions. With facial recognition technology on the rise and COVID and Long COVID still running rampant in our communities, banning masks would put us all …

Tell Congess: Test2Treat Program Saves Lives!

Home #Test2Treat program for COVlD and flu saves lives. Let’s fight for it! Long COVID Justice is co-sponsoring Mask Together America’s campaign to save the Test2Treat program. #Test2Treat was designed to reduce disparities for the most at-risk populations, by offering FREE …

Long COVID Justice BIPOC fellow presents at AAHD conference

What could adequate care and precision treatment for Long COVID look like? Join us for a conversation with a panel of patient advocates & researchers, who will discuss the importance of patient-led research efforts and how that has …

In grief and gratitude: Cecilia Gentili

It is with crushing sorrow that we share the news of the death of our Long COVID Justice advisory team member and beloved comrade Cecilia Gentili. As a LGBTQ community leader calling for more attention to the impact …

Tell Your Reps to Support the TREAT Long COVID Act

Last month,  Representatives Ayanna Pressley, Don Bayer, and Lisa Blunt Rochester re-introduced the TREAT Long COVID Act, which would offer support to those with Long COVID in the form of increased access to medical care and treatment. You can …