a resource sheet series
by The Sick Times x Long COVID Justice
short link to this page: tiny.cc/LCE
This series of resource sheets provides foundational information about navigating Long COVID. Whether you’re newly experiencing confusing symptoms, have had this disease for years, or are helping others in your community, these sheets will direct you to information and resources to support you along the way.
This series is produced by Long COVID Justice and The Sick Times. It is designed by and for people with Long COVID and associated diseases. All resource sheets have been reviewed by people living with Long COVID and/or caregivers, and by medical experts who provide Long COVID care.
We are based in the United States, so some of this information is specific to that context. We are currently able to produce them in English and Spanish. We invite you to contact us if you have resources and capacity for translation into other languages.
The resource sheets can be printed and/or shared as digital PDFs. We encourage you to share them with healthcare providers, community leaders and organizations, mutual aid groups, on social media, and more. All resources in this series are available under CC BY 4.0 Creative Commons. You are welcome to republish them free of charge as long as you credit us and link back to this page.
Please note:
• Resources were published in fall 2024; some information may be subject to change.
• Although each sheet has been reviewed by medical professionals, they are informational resources, not medical advice.
• Always talk to your medical providers before trying treatments or symptom management strategies.
• Each offers brief information and is not comprehensive. We know there is much more information on each topic we cover, and that there are additional topics not yet addressed in this series.
In the absence of public health support and guidance from our government and healthcare systems, we hope these resources will support you in taking care of yourself and your community. We’ve seen the attention of the media and leaders wane, funding disappear, and misinformation spread – even as the overlooked impacts of the COVID pandemic and Long COVID crisis remain widespread. And these impacts are hitting hardest in already marginalized communities. Our work remains as urgent as ever, and we’ll keep fighting for pandemic justice and care for all. Our stories and experiences must be told, believed, and prioritized!
Stay in the loop to get alerted when future resource sheets are published:
Resource sheets
• Resource sheets are in PDF format. They can be viewed/accessed online or printed.
• Online versions have clickable links to additional resources and information. All linked Resources are also available (along with much more!) on our comprehensive Resources page.
• English versions can be printed as a double-sided letter-sized page (8.5×11), except for a few topics which are 3 pages. Spanish versions are often longer.
COMPILATION
Long COVID Essentials: Compilation
Full set of all resource sheets published so far, in one large document. See below for individual sheets by topic.
LONG COVID BASICS
How to avoid getting sick with COVID right now
• View & download
• Writer: Miles Griffis | Editor: Betsy Ladyzhets | Medical reviewer: Dr. David Putrino
What to do if you or someone else in your household has COVID
• View & download
• Writer: Miles Griffis | Editor: Betsy Ladyzhets | Medical reviewer: Dr. David Putrino
Still feel unwell after COVID-19? Here’s what you need to know about Long COVID.
• View & download
• Writer: Miles Griffis | Editor: Betsy Ladyzhets | Medical reviewer: Dr. Ziyad Al-Aly
What is Long COVID?
• View & download
• Writer: Miles Griffis | Editor: Betsy Ladyzhets | Medical reviewer: Dr. Ziyad Al-Aly
CONDITIONS & COMPLICATIONS: Symptoms, treatments & more
Dizziness, Lightheadedness, Racing Heart After COVID-19? It Could Be Dysautonomia
• View & download
• Writer: Kira Signer-Romero | Editor: Miles Griffis | Medical reviewer: Dr. Michelle Haddad
“Brain Fog,” Memory Problems, and Other Neurological Issues after COVID-19
• View & download
• Writer: Simon Spichak | Editor: Miles Griffis | Medical reviewer: Dr. Michelle Haddad
Why You Should be Careful about Activity & Exercise After COVID
• View & download
• Writer: Elly Belle | Editor: Betsy Ladyzhets | Medical reviewer: Dr. Alba Azola
Racing Heart or Chest Pain? Heart Problems After COVID-19
• View & download
• Writer: Erin Durkin | Editor: Miles Griffis | Medical reviewer: Dr. Michelle Haddad
New Allergies or Food Intolerance After COVID-19? Mast Cell and Histamine Issues
• View & download: 2-page version | 3-page version
• Writer: Laura Weiss | Editor: Betsy Ladyzhets | Medical reviewer: Dr. Alba Azola
What to Do When Your Senses of Taste and Smell Are Changed By COVID-19
• View & download
• Writer: Erin Durkin | Editor: Betsy Ladyzhets | Medical reviewer: Dr. Peter Rowe
Having Trouble Sleeping After COVID-19?
• View & download
• Writer: Kira Signer-Romero | Editor: Miles Griffis | Medical reviewer: Dr. Michelle Haddad
How Does COVID-19 Affect Reproductive Health?
• View & download
• Writer: Sadia Arshad | Editor: Betsy Ladyzhets | Medical reviewer: Dr. Alba Azola
What is Myalgic Encephalomyeliitis (ME/CFS) and Severe ME
• COMING SOON !
GETTING HELP
Coming soon!
LONG COVID IN PEOPLE LIVING WITH HIV AND TRANSGENDER PEOPLE
Coming soon!
LONG COVID IN CHILDREN AND YOUTH
Coming soon!
Additional Resources
All supplemental resources linked within the sheets are also available (along with much more!) on our comprehensive Resources page.
Spread the word
What can you do with these resource sheets?
⁕ Print promo postcards (color or black and white), or print any & all individual resource sheets from this series!
⁕ Ask your health care provider, school, library, & community orgs to include Long COVID Essentials in their office and website
⁕ Ask your local Mask Bloc or other mutual aid group to share the resource sheets or promo postcards as they distribute supplies
⁕ Put them in your Little Free Library
⁕ Share a pic of yourself handing one to your health care provider
⁕ Put up on bulletin boards or other community spots
⁕ Share on social media: Instagram, Twitter, Facebook, Bluesky (these links go to the ‘launch announcement’ for the series, and more posts focused on individual resource sheets are coming soon!)
As complex as it can be, Long COVID is just the most recent manifestation of a long under-acknowledged phenomenon of post-infection illness that often drives, worsens, or unmasks a set of understudied complex chronic conditions.
Now, many millions of people are newly or more severely ill, marginalized and under-served. As we saw with the emergence of HIV/AIDS, pandemics expose the critical need for large-scale change in healthcare, public health, and unjust structures that bring inequitable risks of illness, suffering, and mortality. – Read more & sign on to Long COVID Justice’s Pandemics Are Chronic statement
Get in touch!
Have a question or a resource to suggest? Contact us at [email protected]