Programs & initiatives
BIPOC Fellowship and Long COVID Communicators program
The BIPOC Fellowship and Long COVID Communicators program aims to interrupt the marginalization of BIPOC voices in the Long COVID conversation, and to support people living with Long COVID and Associated Conditions (LCAC) to tell their own stories, shift narratives, and participate in advocacy around the issues that impact their lives and communities.
Long COVID Essentials
Long COVID Essentials is a series of 30+ resource sheets that provide accessible information on navigating Long COVID and associated conditions, produced by Long COVID Justice in collaboration with The Sick Times. All sheets have been reviewed by people living with Long COVID and/or caregivers, and by medical experts, and include links to additional in-depth resources and information.
Listening for the Long Haul
Listening for the Long Haul is an oral history project created in partnership with History Moves at University of Illinois-Chicago. Together, we are training and supporting COVID-19 longhaulers to interview and narrate their own experiences. The Listening for the Long Haul website will showcase these oral history, and will be launched in summer 2025.
Naming The Lost
Each spring, Long COVID Justice participates in Naming the Lost, an annual community memorial to the many losses of the COVID-19 pandemic featuring memorials from 20+ community groups from across New York City.
NYC Needs Assessment & Action Plan
The NYC Long COVID Needs Assessment and Action Plan (NAAP) is a major research and advocacy project designed in collaboration with grassroots community groups in New York City. The NAAP focuses on people with Long COVID from highly affected communities whose needs have largely been overlooked, including monolingual Spanish speakers, people living with HIV, trans and non-binary people, and children/youth.
Pandemics Are Chronic (pledge)
Pandemics Are Chronic: A Statement of Commitment to Long Covid Justice is a sign-on pledge that offers a set of principles and practices to guide us in responding to the Long COVID crisis. We are experiencing a mass disabling event, and disabled people and those with Long Covid must be at the forefront of addressing this unprecedented moment.
Reports and Recommendations
Reports and recommendations produced by Long COVID Justice.
Resourcing the HIV Community to Face COVID & Long COVID
This project includes a report (Resourcing the HIV Community to Face COVID & Long COVID) and community webinar (HIV, Long COVID & COVID: Support, Info, Reflection).
Resources & toolkits
Long COVID Justice has created and curated a wide variety of resources and toolkits, on topics including: Direct Action, Resisting mask bans, Hosting COVID-safer events, Finding Long COVID-competent providers, Resources for COVID prevention, Resources for clinicians, Applying for SSDI, and much more.