Resource Hub

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Resources for COVID, Long COVID & associated conditions, and disability

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    Webinars & community conversations

    View our webinar recordings and resources.

    Local and online advocacy, affinity, & support groups

    Find local community and/or connect online:

    For Journalists

    Resource List for Journalists Covering Long COVID, Disability, and Complex Chronic Illnesses.

    Guides & Toolkits

    Direct Action Resource List

    Learn about direct action theory and get tips for planning accessible, COVID-safer actions, including options for taking action from home or bed.

    Resist Mask Bans!

    Get info on resisting mask bans, affirming mask rights, and connecting with local organizing.

    Practicing Inclusion in the Time of COVID

    A brief guide for gatherings and call for disability solidarity, created by our parent organization Strategies for High Impact in partnership with What Would an HIV Doula Do? Available in English and Spanish, or share via Instagram.

    Organizing Toolkit to Keep Masks in Healthcare

    This toolkit provides ideas for taking action and calling for mask requirements to continue in hospitals and other healthcare settings. Created by COVID Advocacy Initiative/Mandate Masks US and COVID Safe Campus with the support of Long COVID Justice and many other groups.

    Medical, self-care, and pacing resources

    For people with a current COVID infection

    For people living with LCAC + their supporters

    Finding Long COVID care

    Prevention

    Prevention basics 
    NEW: Meds to take after an exposure (“post-exposure prophylaxis”)
    Masks work!
    Tests
    Vaccines

    Vaccine basics:

    • Vax news & availability (U.S.)
    • Note on Novavax/Nuvaxovid: Unlike Pfizer and Moderna, Novavax is not available year-round, but is typically available in spring and fall. The next doses will be available in fall 2026.
      • If you do not want to get an mRNA vaccine (Moderna or Pfizer) or had bad side effects, consider Novavax. It is less widely available, though it is typically available at Costco (membership not required), Rite Aid, Publix and CVS and other places. Use Novavax’s vaccine finder to find a vaccine near you (call pharmacy to confirm results).
    • Note: Vaccine access is a shifting landscape under the current U.S. administration, and we will try to add updates here when possible.
    Improving air quality: Ventilation & filtration
    • You can improve air quality via ventilation (bring in clean air from outside) or filtration (clean the air already inside the room/building.) Ideally you would use both of these strategies.
    Ventilation
    • You can use a CO2 monitor to measure ventilation
      • Monitors measure CO2 in the air as a proxy for measuring ventilation
      • Monitors do not measure if air is filtered/purified, because HEPA filters don’t affect CO2 levels. An environment with high CO2 levels and worse ventilation may in fact be safer than an environment with better ventilation but no filtration used. Learn more via Smart Air.
    • CO2 Monitoring of Ventilation: When and How to Use It – People’s CDC (2023)
    Air filters/purifiers
    Other COVID prevention tools
    • Nasal sprays and mouthwashes: Some have ingredients that may protect against COVID, reducing rates of getting it or making it less harmful if you do get it. There is very little data on these agents but some are choosing to use them in addition to masks and other protective measures. We are looking for more info/data and will update when possible.
    • COVID Safety Tips for Dentist Appts – Clean Air Crew
    COVID-safer events and gatherings
    Zines

    Check them out online, or print and distribute in your community:

    LCAD + HIV

    Long COVID may be 4 times more likely in people living with HIV. Check out our HIV & Long COVID webpage for resources and info.

    Long COVID is a Trans Issue

    Learn more via the recording, slides, and resource list for our Long COVID is a Trans Issue webinar.

    For doctors, healthcare providers, and researchers

    For resources that are geared especially toward healthcare providers and researchers, visit our new Providers & Researchers page. Plus, all resources in our Long COVID Essentials series are great to share with your providers.

    Disability Resources

    LCAC & Disability

    Misunderstood types of disability

    Chronic illnesses like HIV, Long COVID, ME/CFS, dysautonomia, or other conditions can cause fluctuating impairments that vary over time. Many of us face stigma and lack of understanding for the different kinds of disability we live with — especially dynamic, episodic, and invisible disabilities:

    • Dynamic: changes and varies from day to day
    • Episodic: periods of disability that come and go
    • Invisible: not always visible/noticable to others
    Applying for Social Security Disability (SSDI) & other benefits
    Navigating healthcare during the pandemic
    Workplace accommodations + other supports

    For resources to share with your healthcare providers, which can support Long COVID diagnosis and treatment, see our Providers & Researchers page.

    Disability Justice – learn more!

    Resources, readings, videos
    Videos & podcasts
    Trainings for groups & individuals

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