Get connected

Support groups, local organizing, online communities, and healthcare providers

Note: Resources listed here are for your information and are not necessarily endorsed by Long COVID Justice. Please send additional suggestions to [email protected].

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    Volunteer with Long COVID Justice

    New! Volunteer Interest Form– Let us know about your interests and learn more about ways to get involved.

    Find a group by location

    COVID Action Map: Searchable international map for finding advocacy groups near you.

    Worldwide Mask Bloc Directory: List of active Mask Blocs around the world. Blocs provide masks, COVID-19 tests and other equipment to their communities for free. Don’t see one near you? Here are some tips on how to start one.

    COVID Advocacy Groups Directory in US and Canada: Spreadsheet with groups sorted into various tabs. Hosted by COVID Advocacy Initiative and COVID Safe Campus.

    Online groups & discussion boards

    Facebook and Reddit have many groups and messageboards related to COVID, Long COVID and associated conditions. Search for keywords like covid, longhauler, masks, CR boxes, etc. Includes online, hybrid, identity, and location based groups.

    Examples of some of the larger and more active Reddit boards (subreddits):


    Discord has many groups including:

    • COVID Solidarity: A social, still-coviding discord.
    • COVID Study Library: Focused on gathering information about COVID (not a social space).
    • Digital Disableds: Specifically for those who identify as disabled and are shielding/self-isolating due to COVID etc.
    • Pandemic! At the Discord! Mostly disabled individuals, many still still self-isolating, and generally dedicated to covid-aware behavior and mutual support.

    Support & affinity groups

    Support Groups page– List of many types of support and affinity groups.

    Black Long COVID Experience, a trusted space offering Long Covid information, resources, and support for you and your loved ones. We are also a compassionate consulting business dedicated to educating the public on the implications of Black Americans with Long Covid and empowering Black communities to advocate for consistent health outcomes.

    Community Care Clinics for Disabled and Chronically Ill Movement Folks, an ongoing community care peer support space aimed at expanding possibilities around how we live and work as disabled and chronically ill people. Hosted by PeoplesHub.

    Co-Resting, online co-resting community groups for people with energy-limiting chronic illness.

    Pillow Crafters & Pillow Writers – Creative crafting and writing communities for people with Long COVID & ME, hosted by #MEAction and Pillow Writers.

    Find a provider

    Related resources & learning